Babies Heart Fund eNewsletter – Fall 2015

By: Daniel Rosenfeld | April 29, 2016

Babies Heart Fund eNewsletter – Fall 2015

  • Patricia Grayson is named Babies Heart Fund Patient Liaison
  • Children’s Cup Golf Classic Raises Support for Babies Heart Fund
  • Pediatric Cardiology: Making Sure the Beat Goes On

 

 

Patricia Grayson is named Babies Heart Fund Patient Liaison

Learning that your child has a congenital heart defect is an overwhelming and emotional experience. Learning how to make your way through the institution where your child will receive his or her care is an extra complication at an already very challenging time. Now families at Columbia University Medical Center (CUMC) who face this news have an additional resource in Babies Heart Fund patient liaison, Patricia Grayson, who is available to assist parents after a recent diagnosis or in advance of an upcoming procedure.

Patricia GraysonIn this newly-created role, Grayson will offer essential guidance and perspective, drawing from her own experience as the parent of a young CUMC patient. In 1993, her daughter, Katya Johns, was treated for congenital tracheal stenosis, an arterial sling, and Wolff-Parkinson-White Syndrome. Katya spent 10 months in CUMC’s intensive care unit, but went on to a full recovery. Katya recently graduated from Harvard University and is now working in New York City.

Grayson joined the Babies Heart Fund board in 2014. She is a principal in her family’s jewelry manufacturing company. Originally from Belgium, she is fluent in Italian and French, and also speaks Spanish. Her hobbies include knitting, needlepoint, and cooking, along with taking care of her three children. If you or someone you know has a patient in their family and would like help navigating the CUMC system, please contact Patricia via email at patricia@gumuchian.com.

 

Children’s Cup Golf Classic Raises Support for Babies Heart Fund

Stanberry golfOn August 10, the Babies Heart Fund held the 2015 Children’s Cup Golf Classic at the new Trump Golf Links in the Bronx. The golf tournament involved 70 players and raised nearly $100,000 to support the Babies Heart Fund in its mission to advance care for children with cardiac abnormalities.

At the conclusion of the tournament, a reception honored the winning team and featured remarks from Julie A. Vincent, M.D., chief of pediatric cardiology, and Patricia Grayson, Babies Heart Fund liaison and parent of a pediatric cardiology patient. The tournament was made possible by the diligent efforts of Babies Heart Fund co-chair Scott Roskind, board member and event chair Brett Carrey, and members of the Babies Heart Fund Benefit Committee.

 

Pediatric Cardiology: Making Sure the Beat Goes On

JAVFrom a single tubular structure present at around the fourth week of pregnancy, humans develop a complex, four-chambered heart that keeps blood moving through the cardiac chambers, lungs, and body over a lifetime. The heart’s development can be altered by a number of genetic and environmental factors during the early stages of fetal growth, causing a range of structural abnormalities that, in general, are termed congenital heart defects or disease (CHD). These are the most common birth defects in the United States, affecting eight in 1,000 newborns.

CUMC, site of the world’s first successful pediatric heart transplant in 1984, remains a leader in research and treatment for CHD, and the Division of Pediatric Cardiology is continuing to expand under Chief of Pediatric Cardiology, Julie Vincent, M.D. “My overall hope is to build a team to improve the lives of children and adults with congenital heart disease through research, collaboration, and new ideas and information,” says Dr. Vincent.

Our mission is to lead the world in curing congenital heart disease
One gene…
One cell…
One heart at a time!

Support The Babies Heart Fund Today

Donate Now